What I Wish I Knew Before Taking Introduction to Persons with Autism Spectrum Disorders
Heyyy BCBA Ruby here!
One of the most impactful courses I took during my journey to becoming a BCBA was Introduction to Persons with Autism Spectrum Disorders (ASD). This course laid the foundation for so much of the work I do today in the field of behavior analysis. But looking back, there are definitely a few things I wish I knew ahead of time to help me feel more prepared and make the most of the experience.
Autism Spectrum Disorder (ASD) is a complex and diverse diagnosis, and it can look so different from person to person. I quickly learned that it’s not just about memorizing a checklist of symptoms—it’s about understanding the nuances of the condition, the lived experiences of those with ASD, and the best ways to support them in a way that aligns with their individual needs. Here's what I wish I knew before I took this course.
1. Autism Isn’t One-Size-Fits-All
When I started the course, I had a basic understanding that autism was a spectrum, but it wasn’t until I was deep into the class that I realized how true this is. Autism is a spectrum in every sense of the word. Each individual with autism experiences a unique combination of strengths and challenges. This became clear as we discussed different presentations of the disorder, ranging from nonverbal individuals to those who are highly verbal and may struggle with social communication or executive functioning.
I wish I had been more aware of how much variation exists within the spectrum. Understanding that autism is not a “one-size-fits-all” diagnosis helped me approach each person with more flexibility and empathy, and it emphasized the importance of individualized interventions.
2. The Importance of Early Intervention
One thing that became crystal clear during the course is just how crucial early intervention is for children with autism. I learned that the earlier we can begin providing support, the better the long-term outcomes. This knowledge helped me shift my mindset and focus on proactive, early strategies rather than waiting for symptoms to worsen.
The earlier we identify and address challenges like communication delays, social difficulties, and sensory sensitivities, the better the chances are that children will make meaningful progress in their development. I wish I had a deeper understanding of this in the beginning because it would have influenced how I approached families and intervention planning.
3. Behavior Is Communication
In our work with individuals with autism, especially those who are nonverbal or have limited language, it’s vital to remember that behavior is communication. This was something that I grasped in theory, but this course gave me the real-world tools to see it in action. Whether it’s engaging in self-stimulatory behavior, tantrums, or withdrawing from social situations, there is always a reason behind it.
I quickly learned that when we see challenging behaviors, it’s important to look beyond the behavior itself and ask, “What is this behavior trying to tell me?” It might be an unmet need, an inability to communicate, or sensory overload. In this course, I started refining my skills in behavioral observation to identify these triggers and respond appropriately.
4. The Role of Sensory Processing
Something I didn’t fully grasp before this course was the significant role that sensory processing issues play in the lives of individuals with autism. From hypersensitivity to certain sounds or textures to under-sensitivity to pain, sensory differences are central to how individuals with autism experience the world.
I wasn’t prepared for how much of an impact sensory processing challenges could have on a person’s behavior. It wasn’t just about addressing behaviors—it was about creating an environment that is supportive of sensory needs. This could mean creating a sensory-friendly space, providing calming tools, or using visual supports to help individuals regulate.
5. Building Relationships with Families
What I didn’t expect was how much I’d learn about the family dynamic and the importance of collaborating with families. Parents and caregivers are the experts when it comes to their loved ones. They know their child better than anyone else, and as a behavior analyst, it’s crucial to build strong, trusting relationships with them.
I realized that the best interventions are the ones that incorporate the family’s knowledge and goals. This meant active communication and ongoing support, so the family feels heard, understood, and supported throughout the intervention process. Being open to family feedback and including them in the decision-making process is key to creating an effective intervention plan.
6. The Need for Flexibility and Patience
One thing that stood out to me was the level of flexibility and patience required to work with individuals on the autism spectrum. Things don’t always go according to plan, and progress can sometimes feel slow. However, this course taught me the importance of being patient with myself, the individual, and the process.
Not every strategy works right away, and not every intervention will lead to immediate progress. But with time, consistency, and support, small steps can lead to meaningful changes. I wish I had realized earlier that patience and persistence are just as important as the techniques you’re using.
7. The Emotional Toll of Working with Autism
Finally, one of the things I didn’t realize was how emotionally draining working with individuals with autism can be. It’s rewarding, fulfilling, and inspiring, but it can also be challenging, especially when progress is slow, or when you're working with families who are experiencing stress and frustration.
This course gave me a deeper understanding of the emotional toll on both the individuals and the professionals who work with them. It’s important to have strategies for self-care and professional boundaries so you can continue to provide the best support possible without burning out.
Key Takeaways:
Autism is a spectrum: Every individual has unique strengths and challenges. No two cases are alike.
Early intervention is critical: The earlier you intervene, the better the outcomes.
Behavior is communication: Look for the underlying cause of behaviors to help guide your interventions.
Sensory processing is vital: Understanding sensory needs is essential to creating a supportive environment.
Collaborate with families: Their insight is invaluable for effective intervention.
Flexibility and patience are key: Be prepared to adapt your strategies and be patient with the process.
Take care of yourself: Working with autism can be emotionally taxing—self-care is important!
Final Thoughts
Taking the Introduction to Persons with Autism Spectrum Disorders course was a turning point for me in my professional journey. It gave me the foundation to understand autism in a more meaningful way, and helped me develop the skills and mindset necessary to work effectively with individuals on the spectrum.
If you're preparing for this course, be ready to challenge your assumptions, grow your empathy, and learn more about the individuals you're working with than you ever thought possible. Autism is complex, but with the right knowledge, resources, and mindset, you’ll be equipped to make a real difference in the lives of individuals and their families.
Until next time, stay curious, stay compassionate, and keep making an impact! 💙
